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Description of the Lived Experiences of Family Caregivers for People With Mental Health Comorbidities

CompletedN/A

Sponsor: Centre for Infectious Disease Research in Zambia

Conditions: Depression, Anxiety, Trauma

Countries: Zambia

Mental health problems such as depression, trauma and anxiety are common in low-resource contexts, such as Zambia. Comorbidity, or having multiple mental health problems, is the norm. Family or friends often care for these individuals in the home. Providing care often leads to disrupted social life, financial hardships and emotional stress. Extant research shows mental health concerns were exacerbated by COVID-19, however, very little is known about the experiences of family caregivers in Zambia during the COVID-19 pandemic. This project aims to describe the lived experiences of family caregivers, including challenges, self-directed coping skills, and access to services and resources.

Eligibility overview

Sex: ALL

Healthy volunteers: Yes

Study type: OBSERVATIONAL

Eligibility criteria

1. Mental health experts Inclusion criteria

   1. Provided counselling or psychiatric care to care-recipients during the COVID-19 pandemic
   2. Works within or around Lusaka city
   3. Willing to participate in the study Exclusion criteria

   a. Did not interact with family caregivers extensively
2. Family caregivers Inclusion criteria

   1. Provide unpaid care to a care-recipient during the COVID-19 pandemic
   2. Live in the same house with the care-recipient Exclusion criteria

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   1. Unrelated to care-recipient. Other carer's such as housekeepers that may assist with home-based care for care-recipients.
   2. Other relatives that assist with logistics (for example driving the patient to a hospital) but do not spend significant time with the patient.
3. Care-recipients Inclusion criteria

   1. Experience one or more mental health problems as reported by either the caregiver or themselves
   2. Cared for by a family caregiver in a home setting during the COVID-19 pandemic
   3. Aged 15 years and above Exclusion criteria

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   1. Care-recipient's with severe mental health illness (e.g. psychosis, schizophrenia and severe dementia) that prevents them from giving informed consent.
   2. Care-recipients institutionalized in a mental health facility and not receiving care from a family caregiver during the COVID-19 pandemic

Locations (1)

Lusaka, Lusaka Province, Zambia