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TSC Biosample Repository and Natural History Database

RecruitingN/A

Sponsor: National Tuberous Sclerosis Association

Conditions: Tuberous Sclerosis, Lymphangioleiomyomatosis

Interventions: Phlebotomy, Buccal (cheek) swab, Genetic Testing, Tissue donation after routine clinical procedure

Countries: United States, Canada

The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively.

Eligibility overview

Sex: ALL

Healthy volunteers: No

Study type: OBSERVATIONAL

Eligibility criteria

Inclusion Criteria:

* Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM).

Exclusion Criteria:

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Locations (26)

Birmingham, Alabama, United States
Loma Linda, California, United States
Los Angeles, California, United States
Oakland, California, United States
Denver, Colorado, United States
Miami, Florida, United States
Chicago, Illinois, United States
Iowa City, Iowa, United States
Silver Spring, Maryland, United States
Boston, Massachusetts, United States
Boston, Massachusetts, United States
Roseville, Minnesota, United States
Kansas City, Missouri, United States
St Louis, Missouri, United States
New York, New York, United States
Rochester, New York, United States
Cincinnati, Ohio, United States
Cleveland, Ohio, United States
Philadelphia, Pennsylvania, United States
Memphis, Tennessee, United States
Dallas, Texas, United States
Houston, Texas, United States
Houston, Texas, United States
Fairfax, Virginia, United States
Montreal, Canada
Montreal, Canada