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Adaption and Testing of the Quality of Life in Short Stature Youth (QoLISSY) Questionnaire for Parents With Children From 0-4

NCT05603936

UnknownN/A

Sponsor: Universitätsklinikum Hamburg-Eppendorf

Conditions: Achondroplasia, Small for Gestational Age, Growth Hormone Deficiency

Interventions: Questionnaire

Countries: Germany

The aim of the study is the adaption, implementation and validation of the instrument for the investigation of the short stature specific quality of life (QoLISSY) for children (age 0-4 years) with achondroplasia (ACH), Small for Gestational Age (SGA) and Growth Hormone Deficiency (GHD) from a parental perspective.

Eligibility overview

Sex: ALL

Age: 18 Years to —

Healthy volunteers: No

Study type: OBSERVATIONAL

Eligibility criteria

Inclusion Criteria:

* Parents of children aged 0-4 with the diagnosis Achondroplaisa, Short for Gestational Age or Growth Hormone Defiency

Exclusion Criteria:

* Other diagnosis than Achondroplaisa, Short for Gestational Age or Growth Hormone Defiency
* Children older than 4 years of age

Locations (1)

Hamburg, Germany