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Global Registry and Natural History Study for Mitochondrial Disorders

RecruitingN/A

Sponsor: LMU Klinikum

Conditions: Mitochondrial Diseases, Kearns-Sayre Syndrome, MIDD, SANDO, SCAE

Countries: Austria, Germany, Italy

The main goal of the project is provision of a global registry for mitochondrial disorders to harmonize previous national registries, enable world-wide participation and facilitate natural history studies, definition of outcome measures and conduction of clinical trials.

Eligibility overview

Sex: ALL

Healthy volunteers: No

Study type: OBSERVATIONAL

Eligibility criteria

Inclusion Criteria:

* suspected or confirmed mitochondrial disease
* willingness to participate

Exclusion Criteria:

* unwillingness to participate

Locations (34)

Innsbruck, Austria
Salzburg, Austria
Munich, Bavaria, Germany
Berlin, Germany
Bonn, Germany
Cologne, Germany
Düsseldorf, Germany
Frankfurt am Main, Germany
Freiburg im Breisgau, Germany
Halle, Germany
Hamburg, Germany
Hamburg, Germany
Hamburg, Germany
Heidelberg, Germany
München, Germany
München, Germany
Reutlingen, Germany
Tübingen, Germany
Bologna, Italy
Bologna, Italy
Bologna, Italy
Brescia, Italy
Cagliari, Italy
Florence, Italy
Genova, Italy
Messina, Italy
Milan, Italy
Milan, Italy
Pisa, Italy
Pisa, Italy
+ 4 more on CT.gov