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Alpha-1 Research Registry

RecruitingN/A

Sponsor: Alpha-1 Foundation

Conditions: Alpha 1-Antitrypsin Deficiency

Countries: United States

The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments and a cure for Alpha-1.

Eligibility overview

Sex: ALL

Healthy volunteers: No

Study type: OBSERVATIONAL

Eligibility criteria

Inclusion Criteria:

* Patients diagnosed with Alpha-1 Antitrypsin Deficiency (PiZZ, PiZNull, PiSZ etc.)
* Alpha-1 carriers (PiMZ, PiMS etc.)

Exclusion Criteria:

* Failure to provide informed consent
* Normal healthy individuals (MM)

Locations (1)

Coral Gables, Florida, United States